IMS Epidemiology Data Dictionary

This is a tool where you can find out more about the data that is shared by IMS Epidemiology. You can view information on variables available in different studies, create data requests, select the variables you would like to request and submit your request. Select a study below to start looking at what we have available or create a user account/login to start a data request.

Over 30,000 participants aged 40-79 recruited between 1993 and 1998. Information collected includes: diet, physical activity, health checks, blood samples and anthropometric data. The Study has over 30 years of follow-up through additional health checks, questionnaires and ongoing linkage to medical record information.

The Fenland Study investigates the interaction between environmental and genetic factors in determining obesity, type 2 diabetes, and related metabolic disorders. 12,435 healthy particiants born between 1950 and 1975 were recruited for Phase 1 between 2005 and 2015, 7830 of these returned for Follow up in phase 2 between 2014 and 2020. Information collected includes: diet, life style, physical activity, blood samples and anthropometric data.

The Dietary Public Health Research and the Food Industry Delphi (COI - Conflict of Interest) Study aimed to build expert consensus on how researchers should prevent and manage conflicts of interest when engaging with the food industry. Participants rated statements about key principles, management strategies, and the types of food industry organisations it may be appropriate to work with.

The GoActive study was a cluster-randomised control trial designed to assess the effectiveness of the GoActive programme on increasing adolescents’ physical activity levels. The study was implemented in 16 schools across Essex and Cambridgeshire with 8 schools receiving the GoActive programme, and 8 remaining as control schools. Measurements assessing physical activity, body composition and psychosocial factors were obtained across 4 different time points.

The BOLT (Behaviours and Outcomes after Liver Transplant) study investigated the diet and physical activity of liver transplant recipients and how these behaviours were associated with cardiovascular disease risk, quality of life, and other health outcomes. The study combined questionnaires, health measurements, and interviews to better understand post-transplant experiences and identify opportunities to improve support and care.

The GLoW (Glucose Lowering through Weight management) evaluated whether a tailored behavioural weight management programme that can be delivered at scale achieves better glucose control and other health outcomes than education alone. It also evaluated whether any improvements in health and wellbeing justify the higher cost of the programme. 577 UK adults with overweight or obesity and a diagnosis of type 2 diabetes within the previous three years were recruited into a randomised controlled trial. Information collected included clinical outcomes, diet, physical activity, medication use and health care resource use at baseline, 6 months and 1 year.

The Traffic and Health in Glasgow study (also known as the M74 study) is a quasi-experimental study of changes to the urban environment consequent on motorway construction in deprived neighbourhoods in Glasgow. It is a mixed-method study, using a combination of quantitative (longitudinal and cross-sectional) and qualitative research methods to evaluate both individual- and population-level changes in health and health-related behaviour and to develop an in-depth understanding of how these changes are experienced and brought about.

The Norfolk Diabetes Case Control Study aimed to help to identify genetic factors linked to type 2 diabetes and its complications. The study aimed to contribute to a better understanding of how diabetes develops and how it can be prevented and treated. This was a case-control study of type 2 diabetes which recruited 6974 prevalent cases of Type 2 diabetes from practices in Norfolk, with cases then matched to EPIC controls.

The ROOTS study investigated how genetic, physiological, psychological and social factors influence wellbeing and mental health during adolescence. Approximately 1,300 adolescents aged 14 years were recruited from schools in Cambridgeshire and Suffolk and followed through adolescence. Information collected included interviews and questionnaires about friendships, moods, physical activity, diet, events and thinking styles. Physical activity was also measured using combined heart rate (HR) and movement sensing monitors and cardiovascular fitness measured using a step-test.

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1,267 adults with overweight or obesity recruited into a randomised controlled trial, allocated to one of three weight loss programmes: brief intervention (a self-help booklet), an open-group behavioural weight management programme (Weight Watchers) for 12 weeks, or the same programme for 52-weeks. Participants were followed up for 5 years, and we collected clinical measurements and self-reported data on psychosocial variables and health resource use at baseline, 3 months, 1 year, 2 years and 5 years. Information collected included clinical measurements, weight, psychosocial data and health resource use.

The Diet and Eating Behaviours across Early Adulthood Transitions (DEBEAT) study is investigating the drivers of changes in diet and eating behaviours through early adulthood. This longitudinal study focuses on the transition out of secondary school to understand how changes in social environments, local food environments and economic factors impact diet and eating behaviours over this period. DEBEAT will recruit 1,500 adolescents in the last year of secondary school and collect data from these individuals over the next year.